Thursday, January 13, 2011

Sleep

People always used to say "enjoy your sleep while you can" well that has taken on new meaning to me and wow do I ever miss sleeping. It has been the most awful, sleep-deprived, stressful past few months of my life. My son as mentioned suffers from eczema, and I mean I used to see people with eczema had some girlfriends with it when I was a kid. BUT it was never what I had ever expected to see on the person that too me, is the most amazing, beautiful, blessing, smart, witty, charming, perfect son I gave birth to. It didn't just happen overnight either. It has progressed into this horrible monster that consumes our life and makes my son scratch his skin until it bleeds and he cries because he simply cannot soothe it. I'm not sure what the trigger was this time (I always seem to think there should be an answer for everything) but to date this has been the worst break out. I have Cruz on total food avoidance of all things he has tested positive to via rast testing and blood tested too. I wash his clothing in dye, perfume, chlorine free detergent and when his skin is super bad I wash it in just hot water and do a second rinse cycle on all his clothing. Everything he wears is cotton, 100%. I don't let him wear anything but. I vaccuum the house like a loon, change the sheets on our bed (he sleeps with me) every second or third day. I wash the floors with vinegar or sometimes bleach. I try and keep everything as natural as possible use baking soda. I use all natural beauty products. I find that Cruz even get's itchy from other people being over. Some are in touch with animals I am sure but I vaccuum after people come over too. It is really nice when someone just get's it. They come over in clean clothes and have made the extra effort to be clean as they know the state of Cruz and how easy he can have a flare up.

I was introduced to wet-wraps by a mother of a little boy with severe eczema who was a patient at National Jewish Health http://www.nationaljewish.org/programs/pediatric/atopic-dermatitis.aspx
this is the link to their eczema program. These wraps HELP, but thing is my son doesn't like me doing them all the time. I should be greatful he's bathing again. It is a struggle to get him into the tub and prior to now he would scream to get into the bathtub as the open wounds from his scrathing would burn and sting when he got into even the most tepid of baths. So we are bathing every two days just to get the dead skin off and to clean his body off from day-to-day stuff he encounters at daycare etc. I need to start wet-wrapping him again on the off days because we simply are not sleeping. Last night alone we were up four times. Twice I lubed him up, one other time I gave him what the doctors say will stop the scratching hydroxazine and the other time I had to rub his itchy skin till he fell back asleep. We snuggle most of the night which for me is crazy because I get neck and back spasms and kinks that alter my range of motion for days and weeks to come. I do get periods of sleep uninterrupted but I worry too about my son and his sleep. He is hard to wake in the morning and always sleeps at nap time at daycare. Then we go home and he is tired and isn't up for too much play. It worries me, as does everything that has to do with him.

He seems to be on the mend but he is extremely red everytime I pick him up from daycare, and when he wakes up in the morning. Not sure why...

I need to go buy more primrose oil for his skin as well as internally for him.

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