I am so tired today as I type this. I am at work and I think I maybe had 5 hours of sleep in total last night. I'm not sure if I'm right but I think my son's hydroxazine (adarax) is making him more restless and itch more. We get no sleep and it is so frustrating. This time of year for him is a nightmare with his skin. It may feel nice but it is so itchy for him. He scratches like crazy! Makes himself bleed. Refuses to bathe, keep clean and fights and screams when the mention of a bath comes up. He is terrified from last year and the wet-wrapping. Which was good - helped us sleep. He is tormented that the water stung his skin so bad.
We went to a new dermatologist last week and the guy gave us an oil to try that has nuts in it but assured me it is fine for ana kids and people in general. I have not used it because I am fearful plus Cruz heard him say it has nuts in it. Now he is terrified to try it. Why do doctors think kids can't or don't hear what they say. Some things are better off not said in front of a child...
No word from our medical yet either and it's been a long while...
Becoming a little impatient.
On a high note Cruz and I got our pictures done on the weekend and they turned out marvelous. Here is one of us from our shoot.
Hugs to all moms & dads with children with Eczema, Allergies, Food allergies and Anaphylaxis
I am a single Mom of a little boy who has allergies, eczema and asthma. His allergies are very severe. I carry an epi pen and we are on total avoidance of milk, eggs, wheat, nuts, and barley. We are now seeing a naturopath for his skin. This has been an on-going battle since Cruz was 3 months old. His first hospital emergency visit was when he was 8 months old from baby cereal. We have been to the hospital 3 times for life threatening reactions.
Monday, October 24, 2011
Friday, October 21, 2011
the waiting game
It's been a few weeks now and the fast turn around has turned into a waiting game. Waiting on MSP (medical services plan) to approve or dis-approve our trip to Denver to go to National Jewish Health (NJH) I hope they make a decision soon. The waiting is making me crazy.
Not sure if any other parents with eczema stricken children find solice in swimming but we do. Last night Cruz and I went swimming and he had a great time as did I. It seems to dry the eczema and allow all dead or infected skin to heal. He is dry after but when you put his regular cream on his skin feels great. I think this is what we will do on a regular. He loves to swim as do I.
This is a breif update but update nonetheless.
All the best!
Not sure if any other parents with eczema stricken children find solice in swimming but we do. Last night Cruz and I went swimming and he had a great time as did I. It seems to dry the eczema and allow all dead or infected skin to heal. He is dry after but when you put his regular cream on his skin feels great. I think this is what we will do on a regular. He loves to swim as do I.
This is a breif update but update nonetheless.
All the best!
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